Research Project Coordinator / Title V Family Involvement Coordinator - Military veterans preferred

Research Project Coordinator / Title V Family Involvement Coordinator

US-OR-Portland

Requisition ID: 2025-35469
Position Category: Research
Job Type: Research
Position Type: Regular Part-Time
Posting Department: Institute on Development and Disability (IDD)
Posting Salary Range: Commensurate with experience, education and internal equity. Minimum: $ 61,318, Midpoint: $ 79,643, Maximum: $ 97,968 at 1.0 FTE.
Posting FTE: 0.50
Posting Schedule: Telework with ability to travel to OHSU Marquam Hill Campus. Some state and national travel required.
Posting Hours: Part-time; 20 hrs per week.
HR Mission: School of Medicine
Drug Testable: No

Department Overview

About The Institute on Development and Disability (IDD)
Link https://www.ohsu.edu/institute-on-development-and-disability/about-us

The Institute on Development and Disability within the Department of Pediatrics at OHSU works with patients, families, clinicians, researchers and many other professionals to meet the goal of improving the lives of people with disabilities. We perform research and care to support every patient, from premature babies to older adults, facing changes in life due to the onset of disabling conditions. With more than 100 years of practice, we understand how to best meet the needs of our patients and their families in Oregon and beyond.

Function/Duties of Position

The OCCYSHN Title V Family Involvement Coordinator position resides within the Oregon Center of Children and Youth with Special Health Needs (OCCYSHN) in the Institute on Development & Disability (IDD) at the Oregon Health & Science University (OHSU).  This position exists to fulfill the mandates of the Maternal and Child Health Bureau Title V Block Grant program for children with special health care needs program and other objectives and goals of the OCCYSHN/IDD/OHSU.

 

The Title V Family Involvement Coordinator reports to the OCCYSHN Family Involvement Manager and will serve as the primary coordinator for all Title V Family Involvement work related to block grant strategies, activities, projects, and during the block grant writing itself. As part of the Family Involvement Program, the Title V Family Involvement Coordinator will contribute to strategic planning efforts, including the development, planning, and implementation of strategies and activities to ensure ongoing, meaningful family involvement in OCCYSHN, Title V,  and IDD-OCCYSHN partnered activities. 

 

In addition, the position will use promote family leadership in Oregon systems, generally, and family-professional partnerships in health care policy. This will include participation in state and national level meetings/committees, creation of tools and guides to promote family leadership, and providing technical assistance to external partner organizations as needed.  To do this, the Title V Family Involvement Coordinator will use current literature and tools from recognized advocacy and health care entities such as: Family Voices, Federation of Families, Association of Maternal Child Health Programs, Institute on Family Centered Care, American Academy of Pediatrics and National Academy for State Health Policy.

 

*Postion requires lived experience parenting a child with special physical, developmental, or behavioral health needs.*

Required Qualifications

• Master’s degree in relevant field AND 1 year of relevant experience OR Equivalent combination of Bachelor's in relevant field in conjunction with training and experience may be considered.  
• Requires specific experience related to family engagement in public health systems.
• Lived experience as parent of a child or young adult with special health needs. 
• Two years’ experience with Maternal Child and Health Bureau (MCHB) systems.
•  Five years’ working in programs or organizations that provide services to, or work on behalf of CYSHN and their families.
• Experience in building and supporting networks.
• Public speaking and/or training groups of people.
• Strong organizational skills.
• Strong plain language writing and editing skills.
• Proven ability to work with diverse populations and multi-disciplinary teams.
• Ability to initiate and maintain partnerships with individuals and organizations.
• Ability to independently initiate and manage work.
• Knowledge of. and ability to work independently with, computers and OHSU-supported software applications.

Preferred Qualifications

• Master’s Degree
• Experience developing, managing and evaluating programs
• Experience in grant development, coordination and management
• Knowledge of MCHB Title V programs
• Knowledge and understanding of Oregon’s systems of support for CYSHCN

Additional Details

Upload cover letter and resume.

Cover letter:

• Please describe your parenting or caregiving experience of a child, youth, or young adult with disabilities or special health needs.  Include your experience navigating disability systems in Oregon or another state.”
• “Applications without a cover letter will not be considered.”

Resume:

Please be sure to include months and years (MM/YYYY format) to the resume for jobs/experience.

All are welcome
Oregon Health & Science University values a diverse and culturally competent workforce. We are proud of our commitment to being an equal opportunity, affirmative action organization that does not discriminate against applicants on the basis of any protected class status, including disability status and protected veteran status. Individuals with diverse backgrounds and those who promote diversity and a culture of inclusion are encouraged to apply. To request reasonable accommodation contact the Affirmative Action and Equal Opportunity Department at 503-494-5148 or aaeo@ohsu.edu.



Equal employment opportunity, including veterans and individuals with disabilities.

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